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Research Health Data Gateway

Easy and fast access to health data enables more and better research!
This website will provide you with an overview of available health data and the entire application process: from initial idea to final application. You will also find information on application requirements and regulatory approval as well as guidelines to facilitate your application process.

For decades, we have collected health data on more than 10 million Danes. We must use these data to gain new knowledge and develop new treatment methods and medicines that can save lives or increase the quality of life for people affected by disease or living with chronic illness. 

Get your research started quickly

The Research Health Data Gateway aims to provide easy and transparent access to health data for researchers. On this website, you will find: 

  • An overview of available health data
  • Application process information and guidance
  • Instructions on how to correctly prepare an application
  • Links to apply for access to and use of health data or approval from relevant authorities

Overview, guidance and access to apply for health data 

The need for information and guidance depends on the specific project and your research and data collection experience. The Research Health Data Gateway consists of three independent functions, which you can use in any order you require: 

  • The Metadata Map is a nationwide online catalogue of available data from the Danish National Health Registers. You can use the Metadata Map to search for and compare available data from the Danish Health Registers to gain insight into which data sources are most suitable for your research project.
  • The “Application” page provides you with an overview of which authorities to apply to, depending on data type. The page also holds information about application requirements, including requirements for documentation and approval from the appropriate authority. 
  • The “Guidance” page contains information about the application process as well as the contact details of relevant authorities and data controllers. You can also find information on how to link data across multiple data controllers or how to collect the necessary approvals for your application. 

No research without data

The Research Health Data Gateway is a collaboration between the Danish Ministry of Health and Danish Regions aiming to enable more and better research in Denmark.

”It’s important that we provide an overview of and secure easy access to Danish health data enabling world-class health research. It contributes to the development of better treatment methods and innovative solutions for the benefit of Danish patients, public health and society.”
-Magnus Heunicke, Minister for Health

More and new features

The Research Health Data Gateway is still being developed. Over the next years, we will add more features to the website. This will, among other things, include a shared application portal enabling researchers and others to apply for access to health data across administrative entities at government and regional level. We expect to launch the Metadata Map in 2022 when more registries have been added. Stay updated on the development of the Research Health Data Gateway here.

Hvem står bag

The Danish Ministry of Health
The Danish Ministry of Health
sum.dk
Danish Regions
regioner.dk
Danish National Biobank
nationalbiobank.dk
Use of medical records for research purposes
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The Danish National Committee on Health Research Ethics
Health Research Ethics Committees
nvk.dk
The Danish National Committee on Health Research Ethics
National Videnskabsetisk Komité
nvk.dk
Nationalt Genom Center
Danish National Genome Center
ngc.dk
Open Patient data Explorative Network
sdu.dk/da/ki/open
The Capital Region of Denmark
The Capital Region of Denmark
regionh.dk
Bio- and Genome Bank Denmark
regioner.dk/rbgb
Regionernes Kliniske Kvalitetsudviklingsprogram
The Danish Clinical Quality Program – National Clinical Registries
rkkp.dk
Statens Serum Institut
Statens Serum Institut
ssi.dk
Logo for sundhedsdatastyrelsen
Sundhedsdatastyrelsen
sundhedsdatastyrelsen.dk

Guidance —
let us point you in the right direction

Below is a list of recommendations you should consider before applying for access to health data. The recommendations are based on experience of what information and descriptions are needed to gain access to health data.

Read more

Metadata Map —
let us point you in the right direction

Get an overview of available health data. You can, for example, search for specific variables and find information about the data controller.

Read more

Application —
overview of and insight into health data

Easy access to apply for health data or approvals from relevant authorities and data controllers

Read more
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